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Location: Toronto, Ontario, Canada

Writer/Curator/Founder of The Autism Acceptance Project. Contributing Author to Between Interruptions: Thirty Women Tell the Truth About Motherhood, and Concepts of Normality by Wendy Lawson, and soon to be published Gravity Pulls You In. Writing my own book. Lecturer on autism and the media and parenting. Current graduate student Critical Disability Studies and most importantly, mother of Adam -- a new and emerging writer.

“There is no hope unmingled with fear, and no fear unmingled with hope.” -- Baruch Spinoza

Wednesday, July 04, 2007

 

The Right to be Disabled

Watch this from The Agenda, a TVO Program on genetic screening and disability and decide if your participation in autism genetics studies and sibling studies are helping autistics contribute to society as autistic people. Ask if our autism researchers are truly respectful of autism as a disability to be respected in the way Deafness and Downs Syndrome should be.

The CBC Quirks and Quarks interview that comes after the TVO one talks to Michelle Dawson and Laurent Mottron and publicized The Joy of Autism: Redefining Ability and Quality of Life that The Autism Acceptance Project put on last year.

VIEW VIDEO HERE

2 Comments:

Anonymous -Brian- said...

One part of any person's right to be disabled is the right to maintain one's finances, without penalty. Right now, in Ontario, a person on Ontario Disability Support Program (ODSP) has to declare all other forms of income (including estate income and lottery prizes). This income is then deducted off of the original ODSP allowance. It's like a person is being told that a 100% penalty for extra income of any kind must be imposed on a person with disability living within Ontario. At least, with the Canada Pension for Disability, there is no such provision, and any extra income is not deducted from the monthly pension. That's the way it should be in Ontario--a fixed disability allowance without penalty for extra income of any kind.

It's not just a matter of birth, but a matter of life and longevity, as well, without penalty (social, as in the form of discrimination, or financial) that persons with disabilities are looking forward to. Without penalty, both before birth, and after birth, life is worth living.

11:06 AM  
Blogger Nick said...

Dear Estee,

I am a PhD student at the University of Sheffield, conducting online research into 'The Politics of Heredity, Disability and Reproductive Technologies'. I wondered if you could assist me with my data collection in some fashion, either by making an announcement on your blog (or carrying a link to my research webpage page), and/or by participating in the research process?

The ESRC funded research examines attitudes towards the topic outlined above and it will explore how differing attitudes towards this topic may reach a shared understanding. Further information can be found by following this link:
http://politics-of-heredity.pbwiki.com/

Your assistance would be much appreciated.

Best wishes,

Nicholas Cimini
Doctoral Student
School of Health and Related Research (ScHARR) & Bakhtin Centre
The University of Sheffield

8:48 AM  

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